advocacy

Two blue text bubbles; the one on the right states, "Public Comment."

Let’s hope they don’t kick me off: these IACC public comments though…

So…I was recently appointed to the IACC, which is the federal advisory board that handles important autism-related matters at the national level. There were ~40-ish? people appointed in total, including 23 public members…and a full EIGHT of us public members are autistic! I am beyond grateful to have an opportunity to serve my community in …

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Until we are all free, we are none of us free.

Hear Our Cry: Call for Solidarity with Autistic BIPoC and Autistic People with Intellectual Disabilities: Demands presented to the Autistic Self-Advocacy Network (ASAN) for their June 20th Board Meeting

To: Meg Evans, Autistic Self Advocacy Network (ASAN) Board of Trustees Secretary   Cc:  Current ASAN Board of Trustees; Julia Bascom, ASAN Executive Director  From: A collective of former ASAN Board and staff, which includes: Morénike Giwa Onaiwu, former ASAN Board of Trustees Vice Chair Cal Montgomery, former ASAN Board of Trustees Chair  Oswin Latimer, former …

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“Neurodiversity Is Dead?” Ion think so. Letter to the Mad In America Editor.

(Image is an autism acceptance word cloud of multiple colors. Source: unknown) Today I wrote a letter to the editor and the president of “Mad in America” about an ableist and disturbing article that they published on their site. Here is what I wrote: “Dear editor, I am writing to express major concerns over your …

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#SorryNotSorry: You Can Keep Your Nonpology

I script a lot, mostly in my head. It calms me. And it helps me process. It seems that there has always been a phrase, a quote, a song lyric that helps to capture what’s on my mind. People often fail me, but words seldom do. This one is easy. Comes from middle school lit …

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Disability Justice is Social Justice; Lean In

Cue the lights, cue the music. The video starts. A young lady with Down Syndrome stands on a grassy football field, her eyes glistening with tears that threaten to roll down her carefully made-up face as she is crowned Homecoming Queen to a chorus of thunderous applause. The next few minutes of the video are …

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Why I Cried On World AIDS Day This Year

I don’t usually cry on World AIDS Day. But this year I did. I’ll explain why. About a month and a half ago I was informed of a mandatory full-day statewide meeting that I and other faculty members in my division would need to attend. I was really bummed when I learned of it…because it …

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I’m Nobody’s Token

“You’re not really supposed to be here,” she said. I was at the sink in the girls’ restroom washing my hands when the words shot out from behind me. I heard the words. I knew what they meant, but I didn’t know what they were supposed to mean. I turned around slowly, a little confused, …

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selective focus of a boxer s fist

Will you fight with me?

(As an FYI, identical version is cross-posted on my advocacy blog [Advocacy Without Borders]; thanks!) In a LOT of ways I am a “minority.” A LOT. But in other ways, I also have a lot of privilege. I live in a resource-rich Western nation. I speak English. I have US citizenship. I am educated. I …

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Gratitude/Update (#NoGroupHome)

Not too long ago, I sent out a desperate plea for help. My family was (is) faced with one of the most difficult situations we’d ever encountered, and we did not have the means to handle it alone. (Many of you might be familiar with the situation; but for those who are not, this link will …

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apps blur button close up

Why I don’t like all of those “get off social media and into the real world” posts

By now we’ve all seen them. The videos, articles, posts, etc that declare how “fake” social media is and stating how important it is to interact with “real people” in the “real world.” Since we’re still in the middle of the “new year, new you” period, such posts are plentiful right now, but you can …

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