autism acceptance

All I Have, All I Am

“Don’t tell me that this isn’t real. Don’t tell me this ain’t how I feel. This is all I have. All I have…” –NF “All I Have”(video) This is my first blog post of 2017. And I’m writing it out of…I’m not sure which emotion, truthfully. I guess a mix of them. Frustration. Sadness. Anger. …

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#JusticeForKayleb is reality. Good things DO still happen in the world…

(This has absolutely nothing to do with the post…but I just happened to glance at the date/time on the corner of my computer screen, and since it’s after midnight it is now 03/15. And because I am a total nerd on top of being a teacher, I can’t move on to the rest of the …

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Lessons from Imperial China, for Disability Day of Mourning (#DDoM)

“Would you bind my feet?” I was on my laptop in my living room entering grades into my online gradebook. Basically working from home for free (as usual…that’s #teacherlife for you, right?) on a warm weekday afternoon. The kids were afoot as they always were: my youngest daughter snuggled against my back as we sat …

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Accommodation is What Respect Looks Like in Public/Upbeat CPR Rocks

Yesterday my youngest child turned five years old. Birthdays are a big deal around here, as no day is promised to any of us and I view a new year of life as a new adventure to be embarked on in the story of our lives. Additionally, in our family we don’t believe in a …

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Dear Ms. Ruby Bridges

(This is cross-posted at the “Advocacy Without Borders” blog as well, available here.) My six year old daughter came home with a book about Ruby Bridges today. At first I was taken aback. How on Earth do you make any sense of segregation and hatred to a child who knows nothing of that life…without making them self-conscious, fearful, …

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I don’t want your autism awareness; I want autism acceptance.

Today is “World Autism Awareness Day.” While I think awareness is important, I ask you, as a Autistic mom to Autistic and non-Autistic kids: What value is awareness without acceptance? We have been “aware” of HIV for decades and yet people still choose to fear and stigmatize those living with it (case in point: HIV …

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black pencils with white erasers

Erased

Dear “autism community,” especially autism parents, Far too frequently the perspectives and experiences of autistic adults are dismissed by autism parents. Not by all parents, of course, but too many. We are told that we are “too high functioning” to understand what you are “dealing with.” We are told that we cannot understand the “severe …

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Speaking Truth to Power: Autistics Speaking Day!

(To learn about what “Autistics Speaking Day” is, click here.) This is my very first Autistic Speaking Day! And true to form, I’m writing this in the evening, the day of (it’s all about that time agnosia).  I have no idea if it will be able to be included, but I’ll try anyway.) 😉 Several months …

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white paper with black text

Autism Defined: A Poem

This is autism. A world where we are defined as a list of “deficits” and “problems” needing to be overcome.  This is autism. A world where our killers can be showered with sympathy and compassion for having had to endure a life with us.  This is autism.  Incessant fatigue created by having to navigate societies …

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Face the truth: what you REALLY mean when you say “low-functioning”

I’m so freaking tired of people throwing around functioning labels. “High” functioning autism. “Low” functioning autism. “Moderately,” “mildly,” or “severely” affected by autism. Aside from the fact that these labels are arbitrary, divisive, imprecise, and inaccurate, they just don’t make sense.  As someone (not me) brilliantly stated, “Low functioning means that your strengths are ignored; …

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