autism awareness

All I Have, All I Am

“Don’t tell me that this isn’t real. Don’t tell me this ain’t how I feel. This is all I have. All I have…” –NF “All I Have”(video) This is my first blog post of 2017. And I’m writing it out of…I’m not sure which emotion, truthfully. I guess a mix of them. Frustration. Sadness. Anger. …

All I Have, All I Am Read More »

Accommodation is What Respect Looks Like in Public/Upbeat CPR Rocks

Yesterday my youngest child turned five years old. Birthdays are a big deal around here, as no day is promised to any of us and I view a new year of life as a new adventure to be embarked on in the story of our lives. Additionally, in our family we don’t believe in a …

Accommodation is What Respect Looks Like in Public/Upbeat CPR Rocks Read More »

I don’t want your autism awareness; I want autism acceptance.

Today is “World Autism Awareness Day.” While I think awareness is important, I ask you, as a Autistic mom to Autistic and non-Autistic kids: What value is awareness without acceptance? We have been “aware” of HIV for decades and yet people still choose to fear and stigmatize those living with it (case in point: HIV …

I don’t want your autism awareness; I want autism acceptance. Read More »

white paper with black text

Autism Defined: A Poem

This is autism. A world where we are defined as a list of “deficits” and “problems” needing to be overcome.  This is autism. A world where our killers can be showered with sympathy and compassion for having had to endure a life with us.  This is autism.  Incessant fatigue created by having to navigate societies …

Autism Defined: A Poem Read More »

Face the truth: what you REALLY mean when you say “low-functioning”

I’m so freaking tired of people throwing around functioning labels. “High” functioning autism. “Low” functioning autism. “Moderately,” “mildly,” or “severely” affected by autism. Aside from the fact that these labels are arbitrary, divisive, imprecise, and inaccurate, they just don’t make sense.  As someone (not me) brilliantly stated, “Low functioning means that your strengths are ignored; …

Face the truth: what you REALLY mean when you say “low-functioning” Read More »

Autism as seen by my autistic daughter

My sweet girl’s contribution for a community flash blog (that wasn’t part of it because Mommy didn’t submit it on time to be included, oops).  SO I’m sharing it here. She typed this out unprompted and unassisted.  🙂 This is autizum Autizum is something BIG and good. It is fun to type about autizum!  I …

Autism as seen by my autistic daughter Read More »

Aut2Change the Autism Organizations that we support

My city, like many others around the country, hosts a huge autism walk each year. For which organization? You already know; the biggest one. Yep, that one. Last year, before I knew better, I wanted to show my support for the autism community. So I walked. With my kids. And as we walked, we passed …

Aut2Change the Autism Organizations that we support Read More »

It’s just too much

Yesterday I read a blog post written by the Caffeinated Autistic.  It is short, but I suggest that you read it: (http://thecaffeinatedautistic.wordpress.com/2013/11/26/i-am-tired-tw-for-institutionalization-abuse-murder-dehumanization/).  It really makes you think and I am grateful to her for sharing and for having the courage to not conform to the “status quo” even if doing so would be “easier.” In …

It’s just too much Read More »