autistic

Clarification Statement About #BoycottHUBlackAutism 2022

They say that if something happens frequently enough, perhaps instead of looking around for the source of the problem, you should consider looking inward. Maybe I’m just really obtuse…because in all honesty, the idea that I am truly the problem in some the majority of situations just doesn’t make sense to me. I’m being 100% …

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Image contains white text with black borders stating "Black Autistic Lives Matter" in all caps on a white background. Photo credit: Jen White Johnson

When It Comes To Autism, Black Lives Matter

A group of renowned advocates and Black and/or PoC led autism organizations have united to express disappointment about a Today Parents article entitled Why there’s a war between parents of children with autism and autistic adults which was initially published (on August 13, 2021) with no identifiable people of color featured or quoted.  Though several …

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Two blue text bubbles; the one on the right states, "Public Comment."

Let’s hope they don’t kick me off: these IACC public comments though…

So…I was recently appointed to the IACC, which is the federal advisory board that handles important autism-related matters at the national level. There were ~40-ish? people appointed in total, including 23 public members…and a full EIGHT of us public members are autistic! I am beyond grateful to have an opportunity to serve my community in …

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Matrix corridor scene (three figures standing at the end of a long hallway; everything in sight is black with green binary code like the "view" of a computer)

Leaving the Matrix

I was recently part of a coalition that issued an Open Letter (penned by Cal Montgomery and I) and a follow up Memo (which had several co-authors, including many who opted to remain anonymous). The purpose of the Open Letter and the Memo was to make positive changes within the autistic community (and in this …

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Until we are all free, we are none of us free.

Hear Our Cry: Call for Solidarity with Autistic BIPoC and Autistic People with Intellectual Disabilities: Demands presented to the Autistic Self-Advocacy Network (ASAN) for their June 20th Board Meeting

To: Meg Evans, Autistic Self Advocacy Network (ASAN) Board of Trustees Secretary   Cc:  Current ASAN Board of Trustees; Julia Bascom, ASAN Executive Director  From: A collective of former ASAN Board and staff, which includes: Morénike Giwa Onaiwu, former ASAN Board of Trustees Vice Chair Cal Montgomery, former ASAN Board of Trustees Chair  Oswin Latimer, former …

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“Neurodiversity Is Dead?” Ion think so. Letter to the Mad In America Editor.

(Image is an autism acceptance word cloud of multiple colors. Source: unknown) Today I wrote a letter to the editor and the president of “Mad in America” about an ableist and disturbing article that they published on their site. Here is what I wrote: “Dear editor, I am writing to express major concerns over your …

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I’m Nobody’s Token

“You’re not really supposed to be here,” she said. I was at the sink in the girls’ restroom washing my hands when the words shot out from behind me. I heard the words. I knew what they meant, but I didn’t know what they were supposed to mean. I turned around slowly, a little confused, …

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jet cloud landing aircraft

Disrespect & Ableism from a Southwest Airlines Representative: My Story

It has taken me a week to be able to write out my thoughts about my horrific recent experience with Southwest Airlines. Though I did encounter some very helpful and very compassionate Southwest Airlines staff that day, I am hurt, disappointed, and disgusted by the unprofessional and ableist way that I was treated by Southwest …

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Why Churches Can Be Hell for Autistic People, Part 2 of 2 (My Easter Post)

Happy Easter, or Happy Resurrection Sunday, or if neither of those apply to you, Hi! I won’t be going to Easter service because I was in the emergency room some hours ago, and apparently I have bronchitis. So I will be ushering in the day by watching Easter service on the live stream from my …

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silhouette of cross

Why Churches Can Be Hell for Autistic People, Part 1 of 2

Churches can be hell for autistic people – unwelcoming, uncomfortable, unpleasant places to be. This may not be happy news, but it many cases it is true. It has certainly been true for me at different times throughout my life – both during the period of life when I wasn’t a Christian and since I …

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