This article pertains to a specific (past) situation that may or may not be familiar, or even relevant, to some readers who are viewing this. I do think the overall concept is of merit, which is why I will leave this up long after the matter has become “yesterday’s news.” I feel that it provides …
It’s been a long day and my spoons are nearly depleted, but I want to write this, even if I do a poor job of conveying my intended message due to fatigue, because I fear if I postpone it there’s a possibility that I might not get back to it. So I’m asking for your …
Accountability, bridge-building, & seeking a “middle” path Read More »
So…I was recently appointed to the IACC, which is the federal advisory board that handles important autism-related matters at the national level. There were ~40-ish? people appointed in total, including 23 public members…and a full EIGHT of us public members are autistic! I am beyond grateful to have an opportunity to serve my community in …
Let’s hope they don’t kick me off: these IACC public comments though… Read More »
I script a lot, mostly in my head. It calms me. And it helps me process. It seems that there has always been a phrase, a quote, a song lyric that helps to capture what’s on my mind. People often fail me, but words seldom do. This one is easy. Comes from middle school lit …
I don’t usually cry on World AIDS Day. But this year I did. I’ll explain why. About a month and a half ago I was informed of a mandatory full-day statewide meeting that I and other faculty members in my division would need to attend. I was really bummed when I learned of it…because it …
There’s been too much death lately. The hashtags and the “Pray for ______________” slogans have all began to run together in my head. Another bombing, stabbing, shooting…and more lost lives. While the rest of us mourn for a few days/weeks and then resume our lives as they were before the latest tragedy, some people’s lives …
Gone too soon: Missing Sandy, Channing, Gene, Charles, Sharon, and Uncle Read More »
(As an FYI, identical version is cross-posted on my advocacy blog [Advocacy Without Borders]; thanks!) In a LOT of ways I am a “minority.” A LOT. But in other ways, I also have a lot of privilege. I live in a resource-rich Western nation. I speak English. I have US citizenship. I am educated. I …
Not too long ago, I sent out a desperate plea for help. My family was (is) faced with one of the most difficult situations we’d ever encountered, and we did not have the means to handle it alone. (Many of you might be familiar with the situation; but for those who are not, this link will …
Dearest friends, (I hope you all don’t mind a blog post as an update. I know it’s not the same as responding to people individually, but it’s all I am able to manage right now. I hope you can all “feel” my heart through my words.) When I tentatively rejoined/reconnected with the “real world” today …
In March of this year, a US federal budget was released proposing the October 1st elimination of a program called Ryan White Part D. This program provides family-centered healthcare for ~90,000 US women, infants, children, and teens affected by HIV. As part of a family that would be directly harmed by these changes, I engaged …
