disability

Twelve Days

My mother told me that when I was a baby/toddler, I had a fascination with the song “The Twelve Days of Christmas.” I used to script it constantly, singing it at socially inappropriate volumes (i.e. extremely loudly) in public places as well as at home – even when it was nowhere near Christmastime/winter. Another mother …

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Disability Justice is Social Justice; Lean In

Cue the lights, cue the music. The video starts. A young lady with Down Syndrome stands on a grassy football field, her eyes glistening with tears that threaten to roll down her carefully made-up face as she is crowned Homecoming Queen to a chorus of thunderous applause. The next few minutes of the video are …

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Disability, Choice, & the Right to Exist (for #DDOM)

I was asked to write a post about ableism in Pantsuit Nation to be shared with their members. I don’t have the spoons to write a separate post for Disability Day of Mourning as well, so I am using the text of that post here. (Edited to add: Pantsuit Nation has opted not to publish …

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jet cloud landing aircraft

Disrespect & Ableism from a Southwest Airlines Representative: My Story

It has taken me a week to be able to write out my thoughts about my horrific recent experience with Southwest Airlines. Though I did encounter some very helpful and very compassionate Southwest Airlines staff that day, I am hurt, disappointed, and disgusted by the unprofessional and ableist way that I was treated by Southwest …

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silhouette of cross

Why Churches Can Be Hell for Autistic People, Part 1 of 2

Churches can be hell for autistic people – unwelcoming, uncomfortable, unpleasant places to be. This may not be happy news, but it many cases it is true. It has certainly been true for me at different times throughout my life – both during the period of life when I wasn’t a Christian and since I …

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Lessons from Imperial China, for Disability Day of Mourning (#DDoM)

“Would you bind my feet?” I was on my laptop in my living room entering grades into my online gradebook. Basically working from home for free (as usual…that’s #teacherlife for you, right?) on a warm weekday afternoon. The kids were afoot as they always were: my youngest daughter snuggled against my back as we sat …

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everything is connected neon light signage

All of me: how do I know where blackness ends and neurodivergence begins?

Most of us have multiple identities. Few (actually, probably no) people in this world can claim a existence that’s purely homogeneous. We are all different in some way, and usually in several ways. However, there’s a pretty distinct difference in our perspectives and our experiences when our specific differences fall within marginalized and/or minority groups …

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clear glass with candle on table

Don’t Pray My Autism Away

I am autistic.  I am also rearing children who are autistic – along with non-autistic children who have various disabilities. Our home is swimming in acronyms that stand for all of the different diagnoses in our home. We are quite the “motley crew,” my loud, flapping, spinning, scripting, disabled family and I. And though it’s …

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#JeremyMardis was killed by cops; does anyone care?

Last night I was in bed cuddling with my five year old son as he drifted off to sleep. He had a Mickey Mouse toy tightly clenched in one fist and a green marker top clenched in the other. As he grew more drowsy he arched his back and pressed the bottoms of his feet …

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Why I Decided to “Come Out” of the Autism Closet

I’ve always been autistic, but I haven’t always known it. I’ve known that I was different from other people, but that difference didn’t have a name that I was aware of. It was just the way I was. Some of the ways that I was different were things that were pretty cool. Like the way …

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