ethics

Two blue text bubbles; the one on the right states, "Public Comment."

Let’s hope they don’t kick me off: these IACC public comments though…

So…I was recently appointed to the IACC, which is the federal advisory board that handles important autism-related matters at the national level. There were ~40-ish? people appointed in total, including 23 public members…and a full EIGHT of us public members are autistic! I am beyond grateful to have an opportunity to serve my community in …

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Matrix corridor scene (three figures standing at the end of a long hallway; everything in sight is black with green binary code like the "view" of a computer)

Leaving the Matrix

I was recently part of a coalition that issued an Open Letter (penned by Cal Montgomery and I) and a follow up Memo (which had several co-authors, including many who opted to remain anonymous). The purpose of the Open Letter and the Memo was to make positive changes within the autistic community (and in this …

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Second chances? Hell to the naw!

I’m one of those people who fail to respect their own boundaries. The type that falls prey to wishful thinking, to hopefulness, to forgiving too easily. I advise others not to do this, but I struggle to internalize this concept in my own life. So while I am not a big fan of “Do as …

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Twelve Days

My mother told me that when I was a baby/toddler, I had a fascination with the song “The Twelve Days of Christmas.” I used to script it constantly, singing it at socially inappropriate volumes (i.e. extremely loudly) in public places as well as at home – even when it was nowhere near Christmastime/winter. Another mother …

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#SorryNotSorry: You Can Keep Your Nonpology

I script a lot, mostly in my head. It calms me. And it helps me process. It seems that there has always been a phrase, a quote, a song lyric that helps to capture what’s on my mind. People often fail me, but words seldom do. This one is easy. Comes from middle school lit …

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And the truth shall set you free (if you choose to be free)

There are many people who truly believe that Autism Speaks is a benevolent organization that is working on behalf of people on autism spectrum and their loved ones. They might have received Autism Speaks’ “100 Day Kit” from their physician upon diagnosis, or maybe they came across Autism Speaks’ website while searching about autism online. …

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